Pediatrics specialties

Support programs

Our comprehensive pediatric hematology and oncology team consits of physicians, clinic nurses, nurse practitioners, and a full time child life specialist, social worker, chaplain, educational consultant, and psychologist. We provide a wide variety of supportive programs including:

adolescent support and discussion groups
sibling support and discussion groups
parent support and discussion groups
sickle cell disease support group
a program aimed at assisting families who are newly diagnosed with malignant disorders
a program aimed at assisting patients coming off active cancer treatment
individual, family, and couples psychotherapy

In addition, we are proud to be one of only three long-term survivor clinics in Virginia that offers in addition to the annual medical follow-up, retreats, and conferences to this new and emerging generation of adolescents and young adults surviving cancer.

Contact the ASK Pediatric Hematology/Oncology Clinic at (804) 828-9300 for more information on support programs.

Oncology resource links

C4 (Childhood Cancer Community Consortium)
http://www.c4va.org/
C4 Resource Guide

ASK (Association for the Support of Children with Cancer)
www.askweb.org

Brain Tumor Foundation
www.braintumor.org

Cancer Care
(800) 813-HOPE (4673)
www.cancercare.org
Free help through counseling, education, information, referrals, financial assistance.

The Cancer Information Service
(800) 422-6237
www.nci.nih.gov
Answers questions on cancer and offers printed material from the National Cancer
Institute. Research information, statistics, coping, literature and resources, clinical trials.

Cancer Kids
www.cancerkids.org
Helping children with cancer tell their stories to the world

CancerKids.Com
www.cancerkids.com
Fun ways for children to learn about cancer and information for parents.

Candlelighters - Childhood Cancer Foundation
(800) 366-CCCF
www.candlelighters.org
Strives to educate, support, serve, and advocate for families of children with cancer,
survivors of childhood cancer, and the professionals who care for them.

Childhood Brain Tumor Foundation
www.childhoodbraintumor.org

Children’s Cancer Web
www.cancerindex.org/ccw
A quick directory of numerous childhood cancer resources that includes information, links and lists of organizations and resources.

Children’s Hospice International
(800) 2-4-CHILD
www.chioline.org
Resources and support for families from the time of diagnosis-with hope for cure-through
bereavement of family members if cure is not attained.

Children Oncology Group
www.curesearch.org
This site is dedicated to childhood cancer. It offers information that takes the family from newly diagnosed, through treatment, and then after treatment. Resources are available in printable format and are written in both english and spanish.

Connor's Heros
www.connorsheroes.org

Heavenly Lights Children’s Memorial
www.heavenlylights.homestead.com
Memorial site that validates children’s lives and helps raise awareness about childhood
diseases.

Complementary and Alternative Medicine
http://nccam.nih.gov
This site is sponsored by the National Institutes of Health. It is the section of the NIH that deals with complementary and alternative treatments (CAM). There is information available in spanish.

Kidz with Leukemia
www.kidzwithleukemia.com
Interactive CD-Rom to teach children about leukemia, resources and links.

Kristen Ann Carr Fund Forum
www.sarcoma.com
Quarterly newsletter for patients with sarcoma and their families. Relevant resources and
links. Funding is dedicated to improve all aspects of a cancer patient’s life, and also for
research and treatment of sarcoma with an emphasis on adolescents and young adults.

Let’s Connect
www.letsconnect.org
Created by and for young people with serious & chronic health conditions like cancer,
diabetes, cerebral palsy, and lupus.

Leukemia & Lymphoma Society
(800) 955-4572
www.leukemia.org
New diagnosis support, disease information, free materials, answers to questions, support
network and referrals.

Make-A-Wish
(800) 722-WISH
www.wish.org
A wish-granting organization for children, including Make-A-Wish Foundation International and Make-A-Wish Foundation local chapters.

National Cancer Institute (NCI)
(800) 4-CANCER
www.cancer.gov
Comprehensive cancer database. This site provides a wealth of information for patients, families and providers. Includes summaries on cancer treatment, screening, prevention, and supportive care, and information on ongoing clinical trials; fact sheets, news, and other resources. It also offers information in spanish.

NCI Medical Dictionary
www.cancer.gov/dictionary

National Childhood Cancer
(800) 458-6223
www.nccf.org

National Organization of Rare Disorders
(203) 744-0100
www.rarediseases.org
A comprehensive database of diseases with related programs and services.

The Neuroblastoma Children’s Cancer Society
(800) 532-5162
www.neuroblastomacancer.org
Group made up of mostly volunteers who promote local research in Neuroblastoma to
increase awareness about the disease as well as the need for additional research and
funding- until a cure can be found.

The Never-Ending Squirrel Tale
www.squirreltales.com/resource.html
Practical tips and encouragement for parents of kids with cancer, includes a comprehensive resource list.

National Hospice and Palliative Care Organization
(800) 658-8898
www.NHPCO.org
Oldest and largest membership organization representing hospice and palliative care
programs and professionals in the United States. Committed to improving end-of-life care
and expanding access to hospice care.

Parenting Plus
www.parentingplus.net
(239) 433-1528
Parent education and support for raising children. Specializing in serious illness and loss
related issues, including divorce and separation. Phone support also available.

Pediatric Brain Tumor Foundation of the United States
(800) 253-6330
www.pbtfus.org
Supports medical research and promotes public awareness. Provides hope and emotional
support- family support is accessible to patient families and to the medical and social work community and the general public.

Songs of Love
(800) 960-SONG
www.songsoflove.org
A non-profit organization dedicated to creating personalized songs for chronically and
terminally ill children and young adults.

Teens Living with Cancer
(585) 334-0858
www.teenslivingwithcancer.org
Straight-up information for teens with cancer. Based on the vision of Melissa's Living
Legacy Foundation-that all teens with cancer should have opportunities for meaningful, lifeaffirming experiences, beginning at diagnosis, continuing through treatment and remission and, if necessary, when facing death.

Transplant resource links

Blood and Marrow Transplant Clinical trial network
https://web.emmes.com/study/bmt

Bone Marrow Transplant Newsletter
www.bmtnews.org

Massey Cancer Center
www.massey.vcu.edu
NCI designated cancer center we work closely with, and our physicians are collaborating with the researchers at the cancer center.

Long term follow-up resource links

I'm too young for this
www.imtooyoungforthis.org
A resource portal for young adults affected by cancer

Group Loop
www.grouploop.org
A wellness community for cancer support for teens and their loved ones

Cure Search
www.curesearch.org
Resources about all aspects of cancer survivorship

Planet Cancer
www.planetcancer.org

Fertile Hope
www.fertilehope.org

Sickle cell disease and other blood disorder resource links

Central Virginia Coagulation Disorders Center
www.vcuhealth.org/cvccd

Virginia Department of Health
The Virginia Sickle Cell Awareness Programs
www.vahealth.org/sicklecell
This website provides information regarding sickle cell disease to the public and health care professionals. It also offers information regarding screening, referral, counseling, and follow-up services toVirginians at risk for sickle cell disease.

Sickle Cell Info
www.SCInfo.org
This is a comprehensive link for sickle cell education, information and research. The mission of this site is to provide sickle cell patient and professional education, news, and research updates.

Sickle Cell Kids
SickleCellKids.org
This is a kid-friendly website to teach children, teachers, and parents. The site uses fun animations to educate individuals about living with sickle cell disease.

Sickle Cell Disease Association of America
www.sicklecelldisease.org
This is the homepage for the Sickle Cell Disease Association of America, Inc. The site provides sickle cell information.

National Heart, Blood and Lung Institute
www.nhlbi.nih.gov
Part of the federal government’s National Institutes of Health.